zondag 8 juli 2018

Been too long ago - why i was offline

Hello sweeties,

Im so sorry for not being online!
I did do some update on my SL FB, but i yes FB is always exploding so i understand that not everyone got to see it!
Finally i have "time" to write about it here!

I dont even know where to begin!
Last year around this time, my doc finally took me serious...
Lots of hospital/specialist visits and begin this year (Jan) i got diagnosed with EDS the Hypermobile typ.
It explained so much! But still not everything felt right...
In Feb i got my bowels checked out from the inside...
They found nothing, so it was severe IBS.
Know it was at least a 100% diagnose, even when i know i have it since a teenager.
Sadly all info about IBS is mostly the mild versions... 
The meds didnt work that well and i know there was more.. but what?
Docs didnt really care or didnt really think i was feeling so bad, since i have a really high pain level. 
(thats also why they were late to found out i had gallstones because i was not "crying and crawling from pain"!
So i stopped going to the docs, till i noticed that my bloating belly (i look pregnant AF!) was not going away... and even more shocked that i gained 7KG (its like 15lbs?) in just 3 weeks!! Also my energy was going down FAST!
I know this was not right and there was more! So i took myself togheter and got to the doc again...
They tested my thyroid and yes.. i have a (s)low thyroid, that explained my gain weight and why i just stay bloated af! The meds didnt help alot and last week they gave me a higher dosis for my thyroid, but they also found out i have diabetes/diabetic. For that i get called i hope somewhere next week when i can see a specialist. I also have therapy now, since its getting harder to move...pains that are 24/7.
Later this week they also will check my urine and do more bloodwork.
They wanna know if my kidsneys are still 100% working and some more.
So yes, EDS gives you pains, makes you tired etc, but also does a (s)low thyroid and diabetic! So its not weird that i have on a good day around 2-3 hours of energy, getting tired so fast!
Thats why i was offline for so long, I was struggling to stay awake and not pass out and also to keep my pains "under controle" cause the more i do, the worse it gets!
I even need a wheelchair for the days i go out for longer then 1 hour, because if i dont, i will pay for it with days of no energy and days with lots of pains that keep me in bed!
Im working with therapy now to listen to my body because of my pain level i just dont know "how far can i go". I only feel it the day after if i did too much... 
Im trying to get back into sl, since i MISS you all so much, the blogging and pictures i miss it all so so much!

My health just got down so so fast! From daily for hours on SL to... in pain and tired like i did a marathon!

I hope everyone is doing well!

 Like the picture: ENJOY THE LITTLE THINGS!

♥ Chella

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